2025/2130(INL)
EU rare disease action plan
Basic information
2025/2130(INL)
INL - Legislative initiative procedure
Subject
4.20.05 Health legislation and policy
Status
Awaiting committee decision
Key players
-
European Parliament
Committee responsible Rapporteur Appointed SANTGONZÁLEZ CASARES Nicolás (S&D)
10/09/2025
-
European Commission
Commission DG Commissioner Health and Food Safety VÁRHELYI Olivér
Key events
| Date | Event | Reference | Summary |
|---|---|---|---|
| 10/07/2025 | Committee referral announced in Parliament |
Forecasts
| Date | Subject |
|---|---|
| 14/09/2026 | Indicative plenary sitting date |
Technical information
| Procedure reference | 2025/2130(INL) |
|---|---|
| Procedure type | INL - Legislative initiative procedure |
| Procedure subtype | Request for legislative proposal |
| Legal basis | Rules of Procedure EP 47 |
| Stage reached in procedure | Awaiting committee decision |
| Committee dossier |
SANT/10/03248
|
Documentation gateway
-
Document type Committee Reference Date Summary Committee draft report PE785.192 02/03/2026
Additional information
| Source | Document | Date |
|---|---|---|
| European Commission | EUR-Lex |
Transparency
Meetings with interest representatives published in line with the Rules of Procedure
-
Name Role Committee Date Interest representatives GONZÁLEZ CASARES Nicolás Rapporteur SANT 03/03/2026 EUROPEAN ORGANISATION FOR RARE DISEASES NEVADO DEL CAMPO Elena Shadow rapporteur SANT 14/01/2026 EUCOPE Kangaroo Group GONZÁLEZ CASARES Nicolás Rapporteur SANT 25/11/2025 Fundació Sant Joan de Déu GONZÁLEZ CASARES Nicolás Rapporteur SANT 06/11/2025 EUROPEAN ORGANISATION FOR RARE DISEASES GONZÁLEZ CASARES Nicolás Rapporteur SANT 29/10/2025 Spanish Permanent Representation